Evening!!

The weekend was ok. Nothing really exciting really.

Saturday, we were supposed to have severe storms...again. Mom had given us an emergency radio for Christmas so I wondered if it would work like a weather radio..going off during warnings. And it does!! So I set it up for the night because the storms were supposed to be in the wee early morning hours. And uhh..it definitely works LOL I set it too loud so it scared the bejeezus out of me when it went off for the severe storms. But, now I know it works. And at least I know I won't have to wake up with a tornado outside of our window.

Sunday (yesterday) night was bad. Ryker kept waking up and crying. AT around 2am, I asked Bill if he'd take over. Then Ronin woke up at 3am. We had to be up at 6:30am. But Bill let me sleep in and he took care of Kalynn. I got to sleep an extra 30 min before Ryker woke up. So, needless to say, I am tired!!

Kalynn has Girl Scouts this Thursday. She is taking a tour of the police station, so that should be interesting.. Then next Monday and Tuesday, no school! Woohoo!!! I can't believe it's a few days from May!!

Morning!!! First, I wanted to respond to the comments!

Molly-You're welcome! If you have any questions about going cloth, let me know!

Lisa-Ryker is 18 months, almost 19 months. I really hope that it's the case. I started a thread a few months ago at BOLU and some of their kids didn't walk til 20 months! It's so hard to tell if it's developmentally related since he is developmentally delayed, or a physical problem with his spinal cord, or he just isn't ready.


It's been a pretty good week. I can't believe it's already Friday!! Didn't do much this week.
Tuesday went to my "boobie meeting". There was a visitor. She is an LC from NJ, who wrote a couple of books: "Defining Sucess" or something like that. It's about nursing after a reduction. And "Breastfeeding Mother's Guide to Making More Milk" which is about low supply. She was very nice and we enjoyed her visit.

Wed : Not a good day for me. It was one of those days where yes, they were a handful. They were clingy and cranky. If they weren't crying or wanting me to hold them, they were climbing on top of the couch or banging the side table against the back door. I was exhausted by the time Bill got home.

That night we had some severe storms. I really hate this time of year. I think in the past 3 weeks, we've had tornadoes every week. Tornadoes scare the crap out of me. I wish our area had basements. Or that we had some kind of storm shelter.

Anyway, I guess that's it. Nothing really exciting..

Good evening!

Our weekend was good! Brandon and Karla came over. Brandon and Bill went out to see the UFC fight, and Karla and I stayed home with the kiddos. Rented a movie, and it was fun! Just like old times.

This past week went by pretty fast! The boys had a well child check on Wed. Ronin is back on the growth chart for weight (first percentile). He had been off of it for awhile. He's in the 55th pecentile for height. I don't remember the percentile for his noggin. Ryker is on the 3rd percentile for weight, 39th percentile for height, and 90th percentile for his noggin. Unfortunately, they both had ear infections. She is happy that I am still breastfeeding but felt like they needed whole milk as a supplementation. However, I disagree. For one, breastmilk has more fat in it. Also, no matter how much they eat, or how much fat I put in their food, they are going to be small. I found this out with Kalynn. I was always worried because she has always been small. I tried adding more fat, but it didn't and still doesn't work. But, Bill's small. Kalynn's small. The boys are going to be small even though they eat like piglets. But other than that, they are doing great!

The Dr. is still concerned that Ryker isn't walking. She said she'd call the NF clinic to see if they can get him an MRI of the spine to see if his spinal cord is tethered.

Speaking of the NF clinic, they are GREAT. They agreed that Ryker does need more therapy and once a month will not cut it. So the Drs at the NF Clinic are going to write a letter about getting him more therapy. Hopefully, he'll be able to get more. The reason why his therapy got cut was because funding was cut. So, we'll see!!

Today, Kalynn was sick. She had been complaining that her ear hurt. So, we got her some Amoxicillin. She has NEVER had an ear infection so she's never had to take this antibiotic. So, I gave it to her this morning and shortly thereafter, she got sick to her stomach. She puked and then slept the entire day. So, I'm thinking it was the Amoxicillin. I don't know if it's an allergic reaction or just a side effect. Needless to say, I won't be giving her anymore.

Anyway, not much else is going on. With that being said, I'm gone! Adios!

Bill thought it'd be fun to use the boys as a turn table LOL

What a crazy past few days!!

I was sick with a fever Monday, Tuesday and Wed. Today I feel better, but not 100%. Monday night was tough..let's just say that Bill redeemed himself.

Wed, Ryker had therapy. I expressed my concern that Ryker seems to be falling more behind. The OT agreed. She said that ECI probably won't give him more therapy due to lack of funding. So, I'm going to look at other options. I am a little hesitant due to money. Even though we do have insurance, it's still quite a bit out of pocket. Hopefully, we'll figure something out.

Wed night was SCARY!! I woke up around 3am with the wind howling. I thought it was a tornado. Fortunately, no it wasn't a tornado but a nasty storm. I was watching Channel 8's news with the weather guy, and when there is circulation, they show them as little rotating circles. They had one of those rotating circles near us but I guess it fell apart. There were lots of those circles all over the radar map. I was VERY scared, and shaking. Thank goodness the kids all slept through it. I decided that it would probably be good to have a tornado drill, just to figure out who will get who and where to go.

Today the kids had an NF clinic appt. The waiting was horrible!! The appt was at 10:3am and we didn't get in a room til 12!! I was by myself with all 3..yeah..not fun. Mom was able to see us since she works close to the hospital. It was nice having an extra set of hands. Note to self: INSIST that Bill takes the day off next time.

Anyway, here's the lowdown:
Kalynn:
Her MRI scans are stable!! No growth!!! I expressed my concerns about her speech, and her writing. There is an education lady and she said she will call the school to see what we can do for her. Otherwise, she looks great!!

Ryker:
His MRI's are stable as well. Apparently, he does have an enlargement of his optic nerve but not big enough to call it an optic glioma, which is great! I expressed my concern about Ryker's delays. The Dr said she would write a script for more therapy. I need to call and find out the information and then I'll call her to get a script..

Ronin:
He has been discharged!! I have no concerns about him, he has no freckling, he doesn't have multiple CAL's. But if I ever have concerns about him, she'd look at him since he'd be there anyway with the other kiddos.

So, even though the wait was horrendous, the clinic itself was great. The people are fantastic. The Dr apologized for the wait, which was nice!

As I was walking out, this lady held the door open for us. I thanked her and she said 'You got one too many!' and laughed. Uhh..yeah.. Really funny lady. So that was another annoying twin comment for the day.

Anyway, I better go and cook some dinner.

The reason why Ryker had to have an MRI is because he has Neurofibromatosis Type 1. It's a genetic disorder where tumors grow anywhere on their body. So, they do an MRI to make sure there aren't any new growths. They (Kalynn and Ryker) have to have an MRI every year to make sure everythings fine.

Blaaaaaaahhh. I feel like doody. My head hurts and my throat hurts. The boys are coughing and have snotty noses. So, that's set back their sleep....again. It seems like once we start getting a handle on their sleep, something has to come up and disrupt it. Sooo frustrating!!

Thursday, all 3 kids have an appt at the NF clinic. I am a little nervous because we're supposed to have severe weather that day. GREAT. Hopefully, it'll rain AFTER we get there and it'll stop when we're done. I'll probably be there all morning and some of the afternoon.

Ryker had his MRI this past Thursday.

That morning was tough. Ryker wasn’t able to eat any solid foods, but fortunately, he was able to nurse til 9am. So, what I did was, Ryker got up at 6:30am, and I decided to let Ronin sleep a little late. Ronin woke up at 8am, and at 8:30am, I put Ryker down for a nap. That way I could feed Ronin his breakfast without having to worry about Ryker. I let Ryker sleep until right before we left (I had already gotten him dressed). So, it all worked out.

We got to the hospital. When it was time for the IVs, poor Ryker had a hard time. They couldn’t find a good vein in either hand, so they ended up having to get an IV in his foot. Poor baby being stuck 3x’s :(

I went with him to the MRI room. I was able to stay there until he was sedated. The nurses commented about how hard it was for him to go down! LOL Ryker fought tooth and nail to stay awake! Finally, the meds got the best of him and he finally fell asleep.

The MRI machine made me feel soooo weird..I started feeling really dizzy and sick. It felt like my internal organs were about to rip from my body. I had to leave for a few minutes. I was able to come back but I stood further away from the machine, and it was fine. It was just so weird.
I decided to get some lunch, and after lunch, I let Ronin walk around a bit. He was so stinkin’ cute. He kept saying "bye bye thithter!" (sister). He was saying bye bye to other things but I couldn’t make out what he was saying.

Got back to the room and poor Ryker was so out of it. I was finally able to nurse him. We tried the juice first but he didn’t want it. By 7pm, he was still a little groggy but not as much. We had to watch him like a hawk because he still wanted to climb on top of the couch with Ronin.

I was so afraid that their night time sleep would be interuppted but they both slept through the entire night!!! They both slept til 6:30am! It was great.

Course, now everyone is sick. I expected last night to be a bad night and it was. I swear, it seems like we're always getting set backs with their sleep. Kalynn and I are coughing and have sore throats. The boys are coughing. Fun.

Thursday, all 3 kids have appts at the NF clinic. All 3 because we're not 100% sure that Ronin doesn't have it. I don't THINK he has NF but they just want to make sure..

Anyway, I better jet. Ryker is crying and refusing to take a nap.

Response to Molly re: covers

The covers thast I use for my prefolds (I also use pockets, which don't need covers) are

Bummis Super Whisper Wraps:

http://www.pinstripesandpolkadots.com/products/pc/viewCategories.asp?idCategory=28







Proraps:


http://nickisdiapers.com/catalog.php?category=65







I also have some customs from Wiggle worm Bottoms:

http://wigglewormbottoms.com/store/Default.asp









My next purchase is going to be Starbunz, they are SO cute!
http://lilbunz.com/store/WsDefault.asp?Cat=DiaperCovers&Sub=196&isThumbs=No&Thumbs=

If you just use prefolds and covers, you could get by with about 6-8 covers. The great thing about the covers like the Bummis and the Proraps, is that you can reuse them several times.

If you have anymore questions, let me know! :)